“When tempted, invoke your angel. He is more eager to help you than you are to be helped! Ignore the devil and do not be afraid of him: He trembles and flees at the sight of your guardian angel.”
- St John Bosco
‘The world is indeed full of peril, and in it there are many dark places; but still there is much that is fair, and though in all lands love is now mingled with grief, it grows perhaps the greater.’
– Haldir, J.R.R. Tolkien
– Haldir, J.R.R. Tolkien
I am currently in a chair doing the R in EPOC-R which is a biological. I enjoy the Benadryl drip most of all because of the deeply desired sleep. Later will be my first of six lumbar punctures to withdraw spinal fluid for testing and the administering of chemo in the spinal cord canal. I was discharged from the hospital for these two procedures because the insurance coverage is out patient only.
The first round of chemo was inpatient because of the needed observations and testing required for this first round of EPOC-R. This chemo plan has the intensity increasing as I go alone based on my tolerance of the chemotherapy. So far the side effects are limited to anxiety and insomnia. Mental anguish and fatigue are the physical and mental side effects so far. However, the results and side effects will be sneaking in after I am home next week. While I had time during the day, I started a routine of walking the halls with my IV pole. Gabe just finished marching band at LSU which was a proud moment for me to watch him march down Victory Hill at all of the home games. So, I walked during my treatment this week visualizing myself walking my own Victory Hill. The Golden Band from Tigerland was my inspiration to pull me from my hospital bed and walk, pushing my IV pole that I nicknamed " T- Mike." "Little" MIKE was an acronym for Mindful In Kindness Experience. So this is my own personal season. LSU vs Cancer. I am currently in my self proclaimed Pregame. I daily walked the halls on my floor to the LSU Pregame program.
I learned that treatment plans are as diverse as the types of cancers. It took two people to access my port which will become a constant theme going forward. Doxorubicin, Vincristine, and Etoposide which are commonly known as "red devil" which started on a Friday, Feb. 1 at 11:45 pm. Yes, that is right...not a typo, almost midnight, and I finished around 9:30 pm on Saturday evening. This allowed me a quick shower before hanging bag number two for another 24 hour cycle ending Sunday. Bag three began Monday with a shower in between and a new port dressing change. Monday came around with the need for Lasix to help remove the fluid building up in my body. The fourth bag ended at 10:30 pm Tuesday evening. During all of this, every two hours during the daytime I kept walking the halls of floor 8 with "T- MIKE." The fifth bag of chemo with a two hour infusion of saline cased with a 30 minute drip of Cytoxan followed with a saline bag. I was visited by social workers, case workers, Nurse Practitioners, nurses, pharmacists, and the doctor and residents before being discharged for my outpatient portion with which I started this entry.
After the 6 hours it took for the Rituxan infusion, the side effects for this were weakness and tiredness which left me without being able to keep my walking routine. My weakness made me feel like early in the first quarter the opponent was in the red zone about to score. With that in mind, it was time for my first lumbar puncture and intrathecal infusion of Methotrexate, drug seven, but who's counting?
For the next three weeks, it was time to recover, and after staying the night at the Brent House I moved to my new home away from home which was Aimee's home. Tanya and Aimee created a chart for all my new medicines that I would be taking for the next six or so months. Medicines included an anti-viral, an anti-bacterial, and an anti-fungal, which was so many pills and so difficult to get my head around how my body was going to be dealing with all these things being done to it.
My side effects will be showing up next week, and I have two weeks of biweekly blood work at the Oschner's Covington clinic beginning. I have to look forward to doing round two on Feb. 25. Tanya was able to be by my side for this first round, and I thank her for the detailed notes of this round. She was my Simon of Cyrene.
I learned that treatment plans are as diverse as the types of cancers. It took two people to access my port which will become a constant theme going forward. Doxorubicin, Vincristine, and Etoposide which are commonly known as "red devil" which started on a Friday, Feb. 1 at 11:45 pm. Yes, that is right...not a typo, almost midnight, and I finished around 9:30 pm on Saturday evening. This allowed me a quick shower before hanging bag number two for another 24 hour cycle ending Sunday. Bag three began Monday with a shower in between and a new port dressing change. Monday came around with the need for Lasix to help remove the fluid building up in my body. The fourth bag ended at 10:30 pm Tuesday evening. During all of this, every two hours during the daytime I kept walking the halls of floor 8 with "T- MIKE." The fifth bag of chemo with a two hour infusion of saline cased with a 30 minute drip of Cytoxan followed with a saline bag. I was visited by social workers, case workers, Nurse Practitioners, nurses, pharmacists, and the doctor and residents before being discharged for my outpatient portion with which I started this entry.
After the 6 hours it took for the Rituxan infusion, the side effects for this were weakness and tiredness which left me without being able to keep my walking routine. My weakness made me feel like early in the first quarter the opponent was in the red zone about to score. With that in mind, it was time for my first lumbar puncture and intrathecal infusion of Methotrexate, drug seven, but who's counting?
For the next three weeks, it was time to recover, and after staying the night at the Brent House I moved to my new home away from home which was Aimee's home. Tanya and Aimee created a chart for all my new medicines that I would be taking for the next six or so months. Medicines included an anti-viral, an anti-bacterial, and an anti-fungal, which was so many pills and so difficult to get my head around how my body was going to be dealing with all these things being done to it.
My side effects will be showing up next week, and I have two weeks of biweekly blood work at the Oschner's Covington clinic beginning. I have to look forward to doing round two on Feb. 25. Tanya was able to be by my side for this first round, and I thank her for the detailed notes of this round. She was my Simon of Cyrene.